Confronting Pancreatic Cancer

	Pancreatic Cancer Registries In this age of molecular biology and armed with new understandings about the role that genes play in pancreatic cancer, familial registries are increasingly seen as a powerful resource to gain a better understanding of the disease - and hence better detection or treatment possibilities. We have been able to identify several cancer registries worldwide that are specific to cancer of the pancreas.   If you know of a pancreatic cancer registry which is not included in the list below, please do let us know. Thank you. Webmaster   Known Pancreatic Cancer Registries   I. United States (alphabetical by state)     Pancreatic Cancer Family Registry Center for Medical Genetics Evanston / Northwestern Healthcare Evanston, Illinois 1-800-385-7668 Reference   Familial Pancreatic Cancer Registry Indiana University-Purdue University Indianapolis Indianapolis, Indiana Reference   The National Familial Pancreas Tumor Registry * Johns Hopkins University Hospitals Baltimore, Maryland Reference 1 Reference 2     Pancreatic Cancer Genetic Study * Barbara Ann Karmanos Cancer Institute Wayne State University Detroit, Michigan Contact: Kate Sargent, MS, CGC 313-833-0715 ext 2007 FAX: 313-831-7806   Pancreatic Cancer Genetic Study * Mayo Clinic Rochester, Minnesota Reference Pancreas Cancer Family Registry * Creighton University and University of Nebraska Medical Center Omaha, Nebraska Reference 1 Reference 2     Familial Pancreatic Cancer Family Registry Memorial Sloan-Kettering Cancer Center New York, New York Reference     National Pancreatic Cancer Registry University of Oklahoma Health Sciences Center Oklahoma City, Oklahoma Contact: Mathew Grim, MS 405-271-8685 FAX: 405-271-8697 Reference     Pancreatic Adenocarcinoma Gene-Environment Risk Study and Registry (PAGER) Hillman Cancer Center University of Pittsburgh Medical Center Cancer Centers Pittsburgh, Pennsylvania 888-PITT-DNA (888-748-8362) Reference   Pancreatic Cancer Genetic Study * University of Texas / M.D. Anderson Cancer Center Houston, Texas Reference   Familial Pancreatic Cancer Registry Huntsman Cancer Institute / University of Utah Salt Lake City, Utah Reference     Familial Pancreatic Cancer Fred Hutchinson Cancer Center / University of Washington School of Medicine Seattle, Washington Reference             II. International (alphabetical by country or headquarters)       Familial Gastrointestinal Cancer Registry * Mount Sinai Hospital Toronto, Ontario Canada Reference     National Case Collection Familial Pancreatic Cancer Philipps University of Marburg Marburg, Germany Reference 1 Reference 2     EUROPAC The European Registry Of Hereditary Pancreatitis And Familial Pancreatic Cancer University of Liverpool Liverpool, Great Britain Reference     Japanese Pancreatic Cancer Registry Japan Pancreas Society Kobe, Sendai, and Tokyo, Japan Reference 1 Reference 2     Pancreatic Cancer Registry Pancreatic Disease Multicentric Group Madrid, Spain Reference (pdf file - requires Adobe Acrobat Reader)
	* member of PACGENE Consortium
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