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Pancreatic Cancer Registries
In this age of molecular biology and armed
with new understandings about the role that genes play in pancreatic
cancer, familial registries are increasingly seen as a powerful
resource to gain a better understanding of the disease - and
hence better detection or treatment possibilities.
We have been able to identify several cancer
registries worldwide that are specific to cancer of the pancreas.
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If you know of a pancreatic cancer registry
which is not included in the list below, please do let us know.
Thank you.
Webmaster
Known Pancreatic Cancer Registries
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- I. United States (alphabetical
by state)
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- Pancreatic Cancer Family Registry
Center for Medical Genetics
Evanston / Northwestern Healthcare
Evanston, Illinois
1-800-385-7668
Reference
- Familial Pancreatic Cancer Registry
- Indiana University-Purdue University Indianapolis
Indianapolis, Indiana
- Reference
- The National Familial Pancreas Tumor
Registry *
Johns Hopkins University Hospitals
Baltimore, Maryland
Reference
1
- Reference 2
- Pancreatic Cancer Genetic Study *
Karmanos Cancer Center/Wayne State University
Detroit, Michigan
- Contact: Kate Sargent, MS, CGC
313-578-4240
- FAX: 313-578-4306
Email: sargentk@med.wayne.edu
- Website: The
Pancreatic Genetic Study
- Pancreatic Cancer Genetic Study *
Mayo Clinic
Rochester, Minnesota
- Reference
- Pancreas Cancer Family Registry *
Creighton University and University of Nebraska Medical Center
Omaha, Nebraska
Reference 1
- Reference 2
- Pancreas Cancer Registry
Columbia University Medical Center
New York, New York
Contact: Joanna Martinez-Gomez
212-305-9467
Email: info@columbiasurgery.org
Website: http://www.pancreasmd.org/
- Familial Pancreatic Cancer Family Registry
Memorial Sloan-Kettering Cancer Center
New York, New York
Reference
- National Pancreatic Cancer Registry
University of Oklahoma Health Sciences Center
Oklahoma City, Oklahoma
Contact: Mathew Grim, MS
405-271-8685
FAX: 405-271-8697
Reference
- Jefferson Pancreas Tumor Registry (JPTR)
Thomas Jefferson University Hospital
Philadelphia, Pennsylvania
Contact: pancreasregistry@jefferson.edu
215-955-9402
Website: Jefferson Pancreas Tumor Registry
- Pancreatic Adenocarcinoma Gene-Environment
Risk Study and Registry (PAGER)
Hillman Cancer Center
University of Pittsburgh Medical Center Cancer Centers
Pittsburgh, Pennsylvania
888-PITT-DNA (888-748-8362)
- Reference
- Pancreatic Cancer Genetic Study *
University of Texas / M.D. Anderson
Cancer Center
Houston, Texas
Reference
- Familial Pancreatic Cancer Registry
Huntsman Cancer Institute / University of Utah
Salt Lake City, Utah
Reference
- Familial Pancreatic Cancer
Fred Hutchinson Cancer Center / University of Washington School
of Medicine
Seattle, Washington
Reference
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- II. International (alphabetical
by country or headquarters)
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- Familial Gastrointestinal Cancer Registry
*
Mount Sinai Hospital
Toronto, Ontario Canada
Reference
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- National Case Collection Familial Pancreatic
Cancer
Philipps University of Marburg
Marburg, Germany
Reference 1
- Reference 2
- EUROPAC
The European Registry Of Hereditary Pancreatitis And Familial
Pancreatic Cancer
University of Liverpool
Liverpool, Great Britain
Reference
- Japanese Pancreatic Cancer Registry
Japan Pancreas Society
Kobe, Sendai, and Tokyo, Japan
Reference
1
- Reference 2
- Pancreatic Cancer Registry
Pancreatic Disease Multicentric Group
Madrid, Spain
Reference (pdf
file - requires Adobe Acrobat Reader)
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